Welcome to SUDEP Aware, a not-for-profit
organization dedicated to raising awareness and understanding of Sudden Unexpected Death in Epilepsy (SUDEP), with the
ultimate goal of finding its cause(s) and prevention. It's run by a partnership between Tamzin Jeffs, who lost her
sister to SUDEP in 2005 and lives with epilepsy, and paediatric neurologist/SUDEP researcher Dr Elizabeth Donner.
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them as widely as possible, by email or hard copy (either print them directly or contact us) Discuss
them with your family, friends, work colleagues, patients and healthcare providers. |
NEW! SUDEP eBROCHURES (April 26, 2012)
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NEW! SUDEP eNEWSLETTER (March 26)
 The Making Sense of SUDEP campaign launched its first eNewsletter to keep you up to date with campaign and SUDEP news. Don't
miss the next issue - subscribe today!
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NEW! EPILEPSY REPORT released by IOM (March 30, 2012)
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"Epilepsy Across the Spectrum: Promoting
Health and Understanding."
IOM report identifies public health actions for improving the lives of
those with epilepsy.
Full report available now for free download (right hand column, under 'Get this Report', second tab). |
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Jordan's Slide For SUDEP 24 Feb, Markdale, Ontario
Photo: SUDEP Aware's Dr Donner & Tamzin Jeffs with Dave & Deb Fawcett
What
a FABULOUS day! So full of warmth, love and fun ... to celebrate the life of Jordan Fawcett, and to also help spread
awareness of SUDEP. HUGE thanks to you all for joining us, for making it such a special event and for helping to support our
work through your generous donations in Jordan's memory.  |
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| Jordan Fawcett Memorial Jewellry Set in honour of Jordan and for all those bereaved by SUDEP. For each purchase
made, CAD10 is donated to SUDEP Aware where 100% is used towards SUDEP-related awareness and education
programs.
With huge thanks to the Fawcett family, Ana Maria and purchasers of this set for your support of our work.
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| Dr Elizabeth Donner discusses our current understanding
of SUDEP in the archived webcast of her presentation, at the University of Toronto's Centre for Forensic Science & Medicine, on 27th May.
Our thanks to the UofT CFSM for making
this publicly available.
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"People with epilepsy have the right to know that SUDEP exists,
and they have the right to be responsibly counselled about how to reduce the risk," says SUDEP Aware's Dr Elizabeth
Donner. |
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| In Memoriam: |
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Most Recent:
» SIGN UP to receive our SUDEP eNewsletter.
· In the News: "Sick Kids' Doctor Probes Mystery of Epilepsy", The Star (21 March 2012)
"Teen's Spirit Lives on Through Event", The Sun Times (25 February 2012)
"Genome Sequencing Finds Unknown Cause of Epilepsy", UANews (23 February 2012)
"The Role of Anti-depressants in Reducing SUDEP", Elsevier (8 February 2012)
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Documentation: "Sudden Unexplained Death in Epilepsy: Epidemiology and Risk Factors", Dr Elson So, Neurology Asia (2011)
"SUDEP Counselling: How and When?", Rosemary Panelli, Neurology Asia (2011)
· Webinar: "SUDEP - what you need to know", Dr Lawrence Hirsch @ Epilepsy Foundation Connecticut (2011)
· Events: Join us!
22-24 June, 2012 - Partners Against Mortality in Epilepsy PAME conference, Chicago.
Page update - see local events held in memory of loved ones lost to SUDEP
Find us on:  
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