Welcome to SUDEP Aware.  Our mission is to promote knowledge and understanding of Sudden Death in Epilepsy (SUDEP) through education, research and support.  We hope that you will find the information you are looking for and encourage you to contact us if we can be of any assistance. 



"People with epilepsy have the right to know that SUDEP exists, and they have the right to be responsibly counselled about how to reduce the risk."

SUDEP Aware's Dr Elizabeth Donner talks to Aliyah Baruchin, at the New York Times, about SUDEP - Unmasking Silent Killer in Epilepsy (27 Jul, 2010).




*New* Book - Standing at the Edge: A Year of Days After Sudden Death, by Meg Tipper.

A memoir that "chronicles the author, Meg Tipper's, journey in the land of grief for the first year after the sudden death of her 22 year old daughter Maggie" to SUDEP (Jul, 2010).




Walk/Run in Memory of Friends and Family Lost to SUDEP

We invite you to join us, to meet other families affected by SUDEP and to help raise SUDEP awareness.


Team Epilepsy 2009


Date:       Sunday, 26 September, 2010
Location:  Downtown Toronto

For more information, please see the
event brochure.  If you have any questions, and to register, please call or email Tamzin.




How You Can Get Involved:

Can you recommend an organisation or support group, in Canada/USA, that has helped/is helping you through your SUDEP bereavement?
 
Having gone through the experience yourself, would you like to offer your support to other SUDEP-bereaved families?


If so, we would love to hear from you.  We receive calls from people across Canada & the USA searching for local support information and wanting to talk with someone who understands the pain and loss through SUDEP.  Please help us to help them and 
email Tamzin.




 
In Memoriam:
Slideshow Image Script

 

If you would like to include your loved one in the SUDEP In Memoriam Calendar, or have any questions, please email Tamzin.




Recent Additions to the Website:

Documentation:
SUDEP fact sheet, SUDEP Aware (2010)
SUDEP overview, Epilepsy.com (August 2010)
Events:
Page update - see local events held in memory of loved ones lost to SUDEP
◊ In the News:
21/8 - "'No Closure' for Mother from Kirsty McQueen Inquiry."  Scotland Courier, UK
01/8 - "Tragic Katy Doyle's Family in Line for Top Award."  Sunday Sun, UK
27/7 - "Unmasking Silent Killer in Epilepsy."  New York Times, USA

















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