Welcome to SUDEP Aware, a Canadian charity dedicated to raising awareness and understanding of Sudden Unexpected Death in Epilepsy (SUDEP), with the ultimate goal of finding its cause(s) and prevention.  SUDEP Aware was co-founded in 2008 by Tamzin Jeffs, who lost her sister to SUDEP and lives with epilepsy, and paediatric neurologist/SUDEP researcher Dr Elizabeth Donner at the Hospital for Sick Children, Toronto.  To learn more about us and our work over the past 8 years, read on ...
 
 
 
Mum Ankie Werdekker, whose youngest son has Dravet Syndrome, attended PAME for the first time this year and she shares her experience with us through her 5-day blog. Read stories from other families, and consider sharing yours. Have you got your SA t-shirt to help raise awareness of SUDEP? Contact us for purchase info! Downloadable information brochures available - in English, French & Spanish. Bracelets/pens available for FREE - with your help to cover shipping. Contact us to place your order! Keep in the know about SUDEP!  Sign up to receive SUDEP Aware's newsletter.

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In Memoriam:
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If you would like to include your loved one in the SUDEP In Memoriam Calendar, or have any questions, please email Tamzin.



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