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SUDEP Aware
is a not-for-profit organisation, founded in 2008 and run by dedicated volunteers based in Toronto.
Our mission
is to promote knowledge and understanding of Sudden, Unexplained Death in Epilepsy (SUDEP) through:
EDUCATION
of professional and lay communities to enhance SUDEP awareness and ensure early, accurate identification of SUDEP
deaths. RESEARCH
to understand the causes, risk factors and possible prevention strategies for
SUDEP. SUPPORT
for those affected by SUDEP,
via collaboration with support agencies, other families and health care professionals.
The co-founders and working members are:
Elizabeth J Donner MD FRCPC
Paediatric neurologist at the Hospital for Sick Children in Toronto Reported on the largest cohort of paediatric SUDEP cases whilst investigating SUDEP in children in
Ontario, in 2001 Member of the SUDEP Task Force, a joint American Epilepsy Society and Epilepsy Foundation initiative Vice-President of the Board
of Epilepsy Toronto
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| Olivia Mullin (1975-2007) |
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Tamzin C Jeffs MSc
Lost her
sister, Olivia Mullin, to SUDEP in 2007 Member of the Epilepsy Foundation SUDEP Education Work Group Member of the Board of Epilepsy Toronto
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