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SUDEP Aware is a not-for-profit organisation, founded in 2008 and run
by dedicated volunteers based in Toronto.
Our mission is to promote knowledge and understanding
of Sudden, Unexplained Death in Epilepsy (SUDEP) through:
EDUCATION
of professional and lay communities
to enhance SUDEP awareness and ensure early, accurate identification of SUDEP deaths. RESEARCH
to understand the causes, risk
factors and possible prevention strategies for SUDEP. SUPPORT
for those affected by SUDEP,
via collaboration with support agencies, other families and health care professionals.
The co-founders and working members are:
Elizabeth J Donner MD FRCPC
Paediatric neurologist at the Hospital for Sick Children in Toronto Reported on the largest cohort of paediatric SUDEP cases whilst investigating SUDEP in children in
Ontario, in 2001 Member of the SUDEP Coalition Vice-President
of the Board of Epilepsy Toronto
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| Olivia Mullin (1975-2007) |
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Tamzin C Jeffs MSc
Lost
her sister, Olivia Mullin, to SUDEP in 2007 Member
of the SUDEP Coalition Member of the Epilepsy Foundation SUDEP Education Work Group Member of the Board of Epilepsy Toronto (ET) and ET's delegate to the Canadian Epilepsy Alliance
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