With just two months to go, attention is centered on the upcoming Partners Against Mortality in Epilepsy (PAME) conference. Families are a vital component of PAME and SUDEP Aware is proud to be able to offer PAME travel grants again this year to help families attend. If you’d like to apply but haven’t yet done so, please get in touch for your application form as soon as possible - the event is fast approaching!
We’d also like to hear from families living with epilepsy, who have known about SUDEP for at least 12 months. Enrollment is currently underway, with researchers now particularly looking for male participants willing to conduct a recorded telephone interview of about 45-60 minutes to help them investigate the impact of living with the knowledge of SUDEP. Please share this information and encourage participation in this important study.
As part of our ongoing commitment to furthering SUDEP research, and thanks to the kind generosity of our families and friends, we’re pleased to announce our impending launch of a competition for $50,000 funding of a SUDEP research project. From May 10th, please check our website and social media postings for details and updates.
Tamzin Jeffs, Exec. Dir.