Just three weeks to go until the second Partners Against Mortality in Epilepsy (PAME) meeting! Have you registered yet?! SUDEP Aware's a proud co-founder and sponsor of this 4-day meeting that brings together researchers, healthcare providers and families to discuss SUDEP. This year, thanks to the hard work of our fundraisers and generosity of donors, we're very pleased to provide travel grants to enable four SUDEP-bereaved parents to attend this worthwhile event.
In this edition of our eNewsletter we continue the important theme of encouraging SUDEP discussion, to discover the practices of healthcare providers and the views of families. Two authors of recently published research articles kindly share their findings with us, below.
If you're new to SUDEP Aware and would like to know more about us and the work we've done since 2007, you can read Our Story.
As always, if you want to - learn more, get involved, offer your awareness or fund raising ideas, donate some expertise or would like to share your story - we encourage you to contact us!
Tamzin Jeffs & Emma MacDonald, MSOS Campaign