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Several families impacted by SUDEP have set up organisations to help improve
awareness:
Caroline Cunningham Foundation for Epilepsy (2009, Canada) - Mission: to provide much needed funding for research into SUDEP, to
raise SUDEP awareness and education.
Chelsea Hutchison Foundation (2010, USA) - Mission: to help individuals with epilepsy, to raise funds for seizure-alert
dogs and to make those living with epilepsy aware of SUDEP.
Danny Did Foundation (2010, USA) - Mission: to prevent deaths caused by seizures during sleep.
Epilepsy Grief (2010, Austraila) - Mission: to ensure that everyone with epilepsy, along with their
carers, are given all pertinent information about their condition and are allowed to put preventative measures in place to
hopefully avoid and prevent SUDEP from occurring.
Jessica Green Foundation Inc (2008, USA) - Mission: to provide support,
through fundraising and other means, to organisations engaged in fulfilling the Jessica Green Foundation's vision and
to provide families of those who have loved ones with autism with varioud kinds of assistance.
Joseph Gomoll Foundation (2010, USA) - Mission: to raise money for research, treatment and support of those affected
by epilepsy.
Kim's Crabapple Project (2008, USA) - Mission (in part): to raise funding and awareness for Juvenile Myoclonic
Epilepsy and SUDEP.
Maggie Feiss Fund & Endowment for Baltimore (2009, USA) - Mission: to help the causes which Maggie worked hard for and cared
deeply about.
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