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Several families impacted by SUDEP have set up organisations to help improve
awareness:
Caroline Cunningham Foundation for Epilepsy (2009, Canada) - Mission: to provide much needed funding for research into SUDEP, to raise SUDEP awareness and education.
Danny Did Foundation (2010, USA) - Mission: to prevent deaths caused by seizures during sleep.
Jessica Green Foundation Inc (2008, USA) - Mission: to provide support, through fundraising and other means, to organisations engaged in
fulfilling the Jessica Green Foundation's vision and to provide families of those who have loved ones with autism with
varioud kinds of assistance.
Kim's Crabapple Project (2008, USA) - Mission (in part): to raise funding and awareness for Juvenile Myoclonic Epilepsy and SUDEP.
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