SUDEP Campaign Reaches All Time High
More than 15,000 copies of
a book that brings together global expertise on SUDEP will have been distributed to epilepsy communities around the world
by the end of December 2012.
San Diego, Dec 2012 - The book,
Sudden Unexpected Death in Epilepsy: continuing the global conversation, combines a collection of considered observations by leading experts with the moving accounts by families bereaved by SUDEP.
In the last year, the book’s website www.sudepglobalconversation.com received almost 80,000 hits.
Now the global conversation is set to reach an even wider market, after
a record-breaking 4,500 visitors to the annual American Epilepsy Society gathering in San Diego were each offered a copy in hardback or on a free memory stick. Earlier this year books were given
to delegates at the European Epilepsy Congress in London.
Dr Elizabeth Donner, co-founder of Canadian not-for-profit
SUDEP Aware said "The Global Conversation book is a critical tool in raising awareness of SUDEP. The value is
the combined contributions by scientists, physicians and families bereaved by SUDEP. The
book provides people with epilepsy, their caregivers and healthcare providers with access to reliable information
about SUDEP in a way that is accessible and supportive."
Sudden Unexpected Death in Epilepsy is the term used when someone with epilepsy dies suddenly, often after
a seizure that involves a loss of consciousness.
The success of the global conversation is attributed to a powerful
three-way collaboration between Epilepsy Bereaved, Epilepsy Australia and Canada’s SUDEP Aware, which together reach out to research teams from many countries and over 60 experts from around
the world, enabling effective distribution.
It is a follow-up to the first
edition, Sudden Unexpected Death in Epilepsy: the global conversation, which was published in 2005 and was the
brainchild of the founding partners Epilepsy Australia and Epilepsy Bereaved.