Jordan's Slide For SUDEP 24 Feb, Markdale, Ontario
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fun day of skiing, snowboarding and snowshoeing to celebrate the life of Jordan Fawcett and to bring awareness to SUDEP.
Registration is now open!
If you're unable to join us, please consider making a donation in Jordan's memory. 
All proceeds are towards SUDEP Aware and we much appreciate and thank you for your support. More info ...
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| Now available:
New book that presents the expert's understanding of SUDEP and shares the stories
of eleven families whose lives have been heavily impacted by SUDEP.
Available online or in hard copy (email or call us on 416 556-8770).
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| Jordan Fawcett Memorial Jewellry Set in honour of Jordan and for all those bereaved by SUDEP. For each purchase
made, CAD10 is donated to SUDEP Aware where 100% is used towards SUDEP-related awareness and education
programs.
With huge thanks to the Fawcett family, Ana Maria and purchasers of this set for your support of our work.
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| Dr Elizabeth Donner discusses our current understanding
of SUDEP in the archived webcast of her presentation, at the University of Toronto's Centre for Forensic Science & Medicine, on 27th May.
Our thanks to the UofT CFSM for making
this publicly available.
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"People with epilepsy have the right to know that SUDEP exists,
and they have the right to be responsibly counselled about how to reduce the risk," says SUDEP Aware's Dr Elizabeth
Donner. |
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| In Memoriam: |
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Most
Recent:
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In the News: "University of Iowa involved in Study of Sudden Death in Epilepsy", The Gazette (25 October 2011)
"Adjunctive Antiepileptic Drug Treatment can Lower Risk of Dying from a Sudden Unexpected Death", Medical Xpress (18 September 2011)
"Epilepsy Patients 'Should be Warned of Death Risk", BBC Scotland (25 August 2011)
"Inquiry Finds that Teenagers who Died of Epilepsy were Not Told Condition Could Kill Them", news.stv.tv (25 August 2011)
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Documentation: "Sudden Unexplained Death in Epilepsy: Epidemiology and Risk Factors", Dr Elson So, Neurology Asia (2011)
"SUDEP Counselling: How and When?", Rosemary Panelli, Neurology Asia (2011)
· Webinar: "SUDEP - what you need to know", Dr Lawrence Hirsch @ Epilepsy Foundation Connecticut (2011)
· Events: Join us!
4th Feb, 2012 - SUDEP discussion at ETP's 'Family & Friends' Day, Epilepsy Pipeline Conference, San Francisco. Free admission.
Page update - see local events held in memory of loved ones lost to SUDEP
Find us on:  
Donations (CDN$ or US$) may also be mailed to SUDEP Aware
@ Suite 350, 283 Danforth Avenue, Toronto, Ontario M4K 1N2,
Canada
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