If you have recently lost a loved one to epilepsy, or know of someone who has, please help SUDEP research by considering, or suggesting, the donation of blood samples and tissues for further investigation.  For study information, see
Ion Channels in Epilepsy.

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If you are aware of a person with epilepsy who suffered death, SUDEP or near-SUDEP (defined as a cardiac or respiratory arrest that has required active resuscitation) during video-EEG monitoring, please consider participating in an international study known as the MORTEMUS Project.

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Current SUDEP Research supported by CURE:

Canada

Registry of SUDEP in Children

Elizabeth Donner MD, University of Toronto/Hospital for Sick Children, Toronto

Germany/France

Cardiac Arrhythmias and SUDEP in SMEI and other Nav1.1 (SCN1A) Related Epilepsies

Sebastian Maier MD PhD and Massimo Mantegazza PhD, University Hospital of Wuerzburg; IPMC, Nice-Sophia Antipolis

Sweden

Role of Pharmacological Treatment in the Prevention of SUDEP

Torbjorn Tomson MD PhD and Peter Mattsson MD PhD, Karolinska Institutet; Uppsala University

USA

Efficacy of Fluoxetine in Reducing Ictal Hypoventilation in Patients with Partial Epilepsy

Lisa Bateman MD and Masud Seyal MD PhD, University of California, Davis, CA

USA

Predictors of Cardiac Risk and Beneficial Effects of Pharmacotherapy in Epilepsy

Steven L Bealer PhD, University of Utah, Salt Lake City, UT

USA

Prevention of SUDEP by Serotonergic Agents in DBA/1 Mice

Carl Faingold PhD, Southern Illinois University School of Medicine

USA

Submicroscropic Rearrangements in Cardiac Arrhythmia Genes: The Quest for Genetic Risk Factors for SUDEP

Alica M Goldman MD PhD, Baylor College of Medicine, Houston, TX